Monthly Archives

September 2017

Captain Lee, Star of Hit Reality Show “Below Deck” Leads Buddy Walk FITTEAM

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Captain Lee Rosbach Leads Buddy Walk FITTEAM on October 15 in Markham Park
Captain Lee, Star of Hit Reality Show “Below Deck” Hosts Kickoff with Families of
Broward Gold Coast Down Syndrome Organization to Announce Buddy Walk Team

Coral Springs, FL – September 5, 2017 – The Broward Gold Coast Down Syndrome Organization today announced Captain Lee Rosbach, from Bravo’s hit reality show Below Deck, will lead the Buddy Walk FITTEAM October 15, 2017 at 8:30am in Markham Park, Sunrise, Florida.

“We are delighted, honored, and grateful that Captain Lee will lead a team at the Buddy Walk and will walk alongside all of us October 15,” said Diane De Braga, Executive Director of Broward Gold Coast Down Syndrome Organization. “Having his celebrity involvement in our organization is a great benefit, as one of our goals is to raise public awareness regarding Down Syndrome and how this genetic condition affects the lives of the individuals and families it touches. We are hopeful hundreds of fans will support and register to walk alongside Captain Lee and the FITTEAM at www.bgcDownSyndrome.org/BW.”

Several children and young adults with Down Syndrome were invited to a VIP event with Captain Lee on 110-foot luxury yacht Relentless in Ft. Lauderdale, to commemorate Rosbach’s upcoming support and participation in the Buddy Walk. The kickoff was an exciting experience for the kids to meet the reality star, and a great way to get everyone excited about the upcoming Buddy Walk. The yacht was generously provided by Worth Avenue Yachts.

“I’m pleased to participate to help raise public awareness for Down syndrome and support the Broward Gold Coast Down Syndrome Organization and walking in the Buddy Walk in Markham Park,” said Captain Lee Rosbach.

Captain Lee’s advocacy in supporting Down syndrome awareness will be featured in an upcoming video with several children who are participating in the things they love – boating, the beach, the water, and occasionally a reality show!

There were several other local “celebrities” on hand at the kickoff. Six-year-old Olivia Dissman, daughter of Oliver Dissman and founder of Olivia’s Angel’s Foundation (oafl.org), as well as 27-year-old Garrett Holeve (nicknamed “G-Money”), MMA champion, adaptive athlete, and co-founder of Garrett’s Fight Foundation (www.garrettsfight.org). Olivia and Garret, as well as many others will be walking with Captain Lee’s team for the Buddy Walk October 15, 2017.

Broward Gold Coast Down Syndrome Organization is a family support and resource organization dedicated to serving families who have an individual with Down syndrome. The mission is to improve the lives of people with Down syndrome and their families by providing support, information, education, and advocacy, thus enabling each individual to reach his or her full potential. Quality educational programs, a stimulating home environment, good health care and positive support from family, friends and the community enable people with Down syndrome to lead fulfilling and productive lives.

People with Down syndrome are typically productive and meaningful contributors to society. They attend school, hold jobs, and participate in the world as their typical peers do. However, individuals born with Down Syndrome do have their challenges, which include cognitive delays that affect physical, intellectual, and language development.

Down syndrome occurs when an individual has a full or partial extra copy of chromosome 21. This additional genetic material alters the course of development and causes the characteristics associated with Down syndrome, which occurs in about 1 in every 700 births and affects approximately 400,000 individuals in the United States.

 The Buddy Walk

The Buddy Walk was established by the National Down Syndrome Society in 1995 to celebrate Down Syndrome Awareness Month in October, and anyone can participate and with no special training. The Walk has three primary goals: to promote acceptance and inclusion of people with Down syndrome; to raise funds locally and nationally for education, research, and advocacy programs; and to enhance the position of the Down syndrome community, enabling us to positively influence local and national policy and practice. There is also a 5K for those who prefer to run versus walk to support the organization.

Broward Gold Coast Down Syndrome Organization

The Broward Gold Coast Down Syndrome Organization is a family support and resource organization dedicated to serving families who have an individual with Down syndrome. Or nearly 25 years, its mission is to improve the lives of people with Down syndrome and their families by providing support, information, education, and advocacy, thus enabling each individual to reach his or her full potential.

Broward Gold Coast Down Syndrome Organization is a non-profit parent support group working to enhance the lives of individuals with Down syndrome. When you support the Chapter, you help provide education, communication, socialization, special events, scholarships, and much more. Visit www.bgcdownsyndrome.org or call 954-825-0400.

Our Buddy Walk is held at Markham Park, 16001 W State Rd 84, Sunrise, FL 33326 – October 15, 2017. It includes breakfast, lunch, and lots of family entertainment, such as a DJ, rock wall, bounce house, pony rides, petting zoo, and much more. To register, visit www.bgcDownSyndrome.org/BW or click directly to: http://bit.ly/2gzjVnT

FITTEAM

FITTEAM is proud to support the Broward Gold Coast Down Syndrome Organization. FITTEAM has a global mission to help improve everyone’s quality of life. The company has a vehicle to help people to get “FIT” physically, financially, spiritually, and emotionally. FITTEAM has positioned itself as a leader in developing products and services that will continue to be forward thinking, life shifting, and that can truly make a difference for people around the world.

Founded in January of 2015 and headquartered in Palm Beach Gardens, Florida, FITTEAM is recognized as one of the fastest growing companies in the industry. www.fitteam.com 

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Media Inquiries
For more information contact Cindy Metzler at 561-271-1389 or cindy@cindymetzler.com

Employment, Health Care and Disability Policy Update: August 2017

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The LEAD Center’s Policy Update – Employment, Health Care and Disability provides policymakers, disability service professionals, and individuals with disabilities and their families with information about relevant policy developments regarding Medicaid, the Affordable Care Act and related topics, with a focus on improving employment outcomes for individuals with disabilities.

The August 2017 update includes information about the release of the National Autism Indicators Report from the A.J. Drexel Autism Institute; upcoming bipartisan hearings the U.S. Senate Health, Education, Labor and Pensions Committee (HELP) will hold in September; various ways the government celebrated the 27th anniversary of the Americans with Disabilities Act (ADA); HCBS transition plan updates; the release of the 2015 Annual Evaluation Report from Mathematica Policy Research; and more. Download the August 2017 Employment, Health Care and Disability Policy Update.

The LEAD Center Policy Update – Employment, Health Care and Disability is a project of the LEAD Center in collaboration with the Autistic Self Advocacy Network.

Please share this important and timely resource with your network, via social media, etc. Want to share feedback or topics you would like to see addressed in a future issue? Please write us at info@leadcenter.org.

 

FVDD Annual Statewide Conference

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Florida’s Voice on Developmental Disabilities (FVDD) announces its annual statewide conference which will take place on Saturday, October 28, 2017, at Holy Cross Hospital, 4725 N. Federal Highway, Fort Lauderdale. This will be an all-day conference, registration will include breakfast and lunch, and the theme will be “Empowering You to Be the Best Advocate Possible.”

The program is open to the general public, although CLE’s will be offered to attorneys who attend. Please help promote this Conference by forwarding this information to prospective attendees.

We will have a variety of superb speakers – including a morning town hall meeting of legislators, and other professionals, including self-advocates, will be there to train attendees in advocacy skills, legislative updates, etc.

You may register on line at www.floridasvoice.org – the entire program and registration fees are posted on our website.

Questions? Please call 954/975-5159 [Arlene Lakin, Esq.].

Florida’s Voice on Developmental Disabilities
PO Box 24531
Fort Lauderdale, FL 33307
954/975-5159
www.floridasvoice.org
E-mail: FVDDorg@aol.com