, and Denver Health-University of Colorado Anschutz Medical Campus SOM.
“The GLOBAL Medical Care Guidelines for Adults with Down Syndrome provide first of-kind, evidence-based medical recommendations to support clinicians in their care of adults with Down syndrome. This life-changing resource as published in JAMA covers 9 topic areas deemed critically important for the health and well-being of adults with Down syndrome and outlines critical future research needs. Adults with Down syndrome and their caregivers should review the GLOBAL Guidelines with their clinicians to ensure they are receiving care meeting best-practice standards for adults with Down syndrome!”
Hi everyone! Happy Down syndrome awareness month
Due to Covid-19 we had to postpone our i EXTRA love you exhibition in March, I was hoping we could meet in person and celebrate in October but we are unable to.
This year is all about adapting! I am happy to share that the 2020 portraits will be shared during a virtual exhibition on October 24th at 11am. i EXTRA love you Virtual Exhibition will be hosted on Zoom this year and I hope everyone can join!
I kindly ask that guests make a $5 donation to Broward Gold Coast Down Syndrome Org. The i EXTRA love you portrait project was born at Broward Gold Coast and due to the cancellation of this years walk, they need our support
With love,
Daniela
Link for donation https://bgcdownsyndrome.org/donate-volunteer/
Day 16 of October Down Syndrome Awareness Month! We are celebrating people with Down syndrome by sharing our local individuals with Down syndrome every day this month with their stories. Help spread awareness, acceptance, and meaningful inclusion in schools and community!
Cassandra is our multiple miracle baby. She grew in vitro and was frozen as an embryo for 18 months and was the best embryo of all to thaw. A lot of embryos with Down syndrome don’t make it through pregnancy, but she made it to full term even with a partially detached placenta. Best of all, she was born healthy at 7 pounds and 14 ounces just needing a UV light blanket for her jaundice, and the holes or gaps in her heart healed on their own. She is now 15 months old and has eight teeth and can crawl and cruise and climb and feed herself and help put on and take off her clothes, and she says dadada and mamama and uses sign language to sign for “more.” She loves to play with all toys—especially musical toys—loves to ride her choo choo train toy and loves to play peekaboo and make faces and babble. Her hugs, kisses, smiles and games bring her two year old sister and
her parents so much joy.
Olga Ruiz Baken
#downsyndromeawarenessmonth
#StepUp4DownSyndrome
#inclusionmatters
#Extraordinary
#theluckyfew
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